ENZ: As much as I appreciate your desire to help your friend and get him through a rough time. The reading I've done on this disorder, since you've posted, suggests this is really no joke. I've found that sufferers need routine blood transfusions and the often suffer anemia, which in turn can lead to oxygen deprivation to parts of the body.
I really think this is the wrong place to search for advice for this though. The knowledge base of this forum is for the generally healthy individual.
Has your friend discussed the issue with his hematologist or other doctor? I imagine that would be the best place to start.