Lili's Diary

Oh Anna, I can't even imagine what I would have felt like in that same situation, your a trooper for sure!! What an amazing son you have as well, to go through all that trauma and come out with a good attitude, HUGS TO YOU BOTH!! I hope it heals up real soon!! :hug2:
Kim
 
Wow Anna what a stressful scary day.I would go nuttz's with
nerves and emotion's.You stayed strong and still watched those
calories,you are 1 tough cookie!!Hope the recovery goes smooth
and you get a relaxing day in here soon,Tammy
 
:hug2: Anna that is the MOST HORRIFIC story I have EVER heard regarding a surgery. I am so deeply sorry you and your poor son had to go through that, what the hell??????? Surgery requires anaesthetic and it's one thing if the dose wasn't adequate right away and the anaesthesiologist didn't gauge it correctly, but he TOLD them, and they didn't do anything about it, I mean right? Had he not been bleeding so much, would the doctor have continued to the sinus cavity polyps without administering more medication? Your son really must have a great sense of humor because I would be inconsolable.

I'm happy that you guys were able to come together and laugh about it and also that his BP is alright. You kept it at 1500, that's awesome, you're great! :)
 
Thanks guys, we sure didn't laugh about the messed up surgery yesterday, but my son made us laugh about other things with his Saturday Night Live sarcastic disposition.

Well, this morning the surgeon pulled out Al's packing. He bled too much (probably 1/3 of a litre) I saw it pour into one of those little plastic white kidney shaped trays. When it didn't stop bleeding after 5 minutes had gone by, he had to re-pack the nose. They don't mess around, too much blood loss is death. Oh...my...god. To watch my son go through that kind of pain...I could barely look. He was breathing through his mouth hard and groaning, his face and eyes all scrunched up. Of course his bp went sky high again.

Surgeon said he's concerned about this much bleeding and told us to wait for the internal medicine specialist again. The packing stopped the bleeding. I asked for codeine and a note for Al to miss work. The surgeon must have been flustered at the blood because he forgot the sign the prescription and put off till May, instead of June 7th on the work note.

The specialist showed up and said he'll be writing a letter to us to come see him at his office once Al's nose heals. There's no history of bleeders on either side of the family, except for my brother. Al was weak from the blood loss.

Al's home now, sleeping on the coach where I have him propped at a 30 degree angle, as per instructions. I have dressing changes (not packing), just guaze and tape to cover the nose gently. I bought soup, Boost, juice in a box, tinned fruit (is there any nutrition in tinned fruit?), Alpha-getti and porridge so the kid can eat without opening his mouth super wide.

Today the surgeon confirmed none of his patients are put under general anasthetic because this helps to reduce bleeding. He thinks since Al was on a regime of 10 days of prednisone (steroid to shrink the polyps) prior to the initial surgery date of May 22nd, and his surgery was bumped to May 31st, he did not have the advantage of prednisone, plus he had a cold. And the polyps were so large that he thinks that's why it hurt so much. The nurses did tell me most patients say his surgery is far easier than they expected. So Al is the exception, in terms of high blood pressure, bleeding and pain Poor guy.

We go back Monday morning to have the packing taken out. God I hope it doesn't bleed, because if it does, he may require a different type of packing which I'm not even gonna tell you about.

I'm going to have a nap and then watch movies with my dear boy later. I'm a bit annoyed with my other son because his attitude is just crappy lately. Typical teenager attitude, but I don't have patience for that right now. I wish he had to work today. J can shine and be a soldier, a prince, a gentleman ... but when he's in a rank mood, it's not as peaceful around here as I'd like. And I just want quiet for Al's recovery.

Now I'm just rambling and I'm going to have a nap. It helps to vent in my diary about what we're going through.
 
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Hope you're having a nice nap, enjoy chilling with the poor guy, and I hope the next doctor visit finds him much less bloody :( Try to have a good night!
 
Hi Anna!

First off, sorry that you heard vicious gossip by an ungrateful co-worker :mad:

Second, when I read your son's sugery descriptions I was literally wide-eyed with horror. Your poor baby!!

Third, your son J may be unconsciously jealous of all the attention Al's been getting, maybe on some level. He'll get over it.

Have a decent weekend!!
 
Oh gosh Anna, that is a horrible surgical nightmare. I am amazed you have been able to be as positive as you are. I'm hoping him a speedy recovery.
 
I can't help but to hope for a happy ending to all of this, some kind of blessing in an disguise phenomenon or something. Otherwise it's just too cruel! My thoughts are with you, Anna!
Hugs,
Juliette
 
oh .. my ... god... thats got to be horrific :O

Seriously! being operated on and in pain - i had a C-Section go somewhat wrong and i was in a fair bit of pain during. I made sure i yelled and screamed at the doc enough that they stabbed me with tons of morphine (which didnt really help either).
Its a horrid situation, they should have gone for a general or something more at least.

Kudos for you handling it so well though, and your son.
 
lukewarm said:
Hope you're having a nice nap, enjoy chilling with the poor guy, and I hope the next doctor visit finds him much less bloody :( Try to have a good night!
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Thanks Luke. I hope Monday turns out okay too, because my son said he will not allow a re-packing (but you kind of have to otherwise you'll bleed to death) I just don't want that pain for him again.
Curvie Girlie said:
Hi Anna!
First off, sorry that you heard vicious gossip by an ungrateful co-worker :mad:
Second, when I read your son's sugery descriptions I was literally wide-eyed with horror. Your poor baby!!
Third, your son J may be unconsciously jealous of all the attention Al's been getting, maybe on some level. He'll get over it.
Have a decent weekend!!
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Thanks CG, I'm not even thinking about that boob at work anymore LOL I think teens go in and out of ego-centricism and it's good my other son is learning he is not always the center. He did okay today.
Juliette said:
I can't help but to hope for a happy ending to all of this, some kind of blessing in an disguise phenomenon or something. Otherwise it's just too cruel! My thoughts are with you, Anna!
Hugs,Juliette
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If Al can breath through his nose for the first time in his life, it will be a good outcome...but I'm sure he'd tell me it still wouldn't be worth what he went through.
wishes said:
oh .. my ... god... thats got to be horrific :O
Seriously! being operated on and in pain - i had a C-Section go somewhat wrong and i was in a fair bit of pain during. I made sure i yelled and screamed at the doc enough that they stabbed me with tons of morphine (which didnt really help either).
Its a horrid situation, they should have gone for a general or something more at least.
Kudos for you handling it so well though, and your son.
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I wish as a parent I insisted on general, but he assured us Al would be higher than a kite and some patients even sing. After surgery when I pressed him about the pain, he said it could have been due to his polyps being so huge, the fact they cancelled last week's surgery and Prednisone had therefore left his system, and he had a cold. Well DUH, if you knew all 3 of those things, why didn't you choose general??? You put my kid through TRAUMA you dumb F__k! I didn't say this because he still has to pull out the packing on Monday, and he can refer me to another specialist, but I'm not done thinking about the possibility of sue-ing. Al's spritis are low, but I'm watching comedies with him, cleaning his room and I keep telling him breathing through his nose will be so great.

I ate too much yesterday. I'm going to walk my dog around the lake before I clean my son's room. Thank you everyone for helping me through this!!
 
I'm sorry to hear your son and you are having such a terrible time with this. I hope things are feeling much normal for you both very quickly.

A dietician told me that the nutrition value of tinned fruit is very similar to fresh fruit, so you need feel no qualms about that. :)
 
Hey there Anna. I'm sorry about all the crap you've been going through. It sounds like you have one hell of a tough son; you should be proud of him to the max! Your last post echoed my thoughts exactly. You'd think medical personnel, with all the study they've done and the levels of organisational skills they have to have to carry all those responsibilities would have enough foresight to prevent such a horrible, medieval-style situation. I mean, I can't believe stuff like that happens in the 21st century in our hospitals. Bad enough you had to wait a year... But seriously, I just think you have the greatest patience. You must be a shining light for your family. Your sons are very lucky they have you to look up to.:)

I would seriously be considering sueing in your position too. Docs these days seem more irresponsible than they did when I was a child. I tell you, this really gives me second thoughts about having a nose job-lol.

I'm sure everything will go well and for what it's worth, I'll pray for Alex to have a speedy recovery.

Take care hon. XX
 
I was wondering if anyone would mention a lawsuit. That’s the first thing I thought of, and I’m certainly not sue-happy. Generally if no one is hurt, I’m all for just letting stuff slide. I would be talking to lawyers. Man I can’t believe how irresponsible and unprofessional that surgeon is! He went through 8 years of schooling in addition to at least 6 years of residency to botch up everything? I mean a surgeon just shouldn’t get flustered at the sight of blood. He should sign the damn prescription, show up for scheduled surgeries, and most of all, he should make sure his patient isn’t in any pain! Especially after your son TOLD him that he was experiencing intense pain! I’m getting angry though so I’m going to calm down, you guys are an amazing family, I hope that everything does work out and that you and your poor son don’t have to go through something like that again. I would be documenting and recapping everything that went wrong though in a notebook in case you do end up suing. Pictures as well. Ugh what an ass!
 
I am SOOO sorry about what happened to your son! Reading was bringing me to tears. (I'm kind of emotional right now with TOM being next week). It just broke my heart that he had to go through so much pain. I mean from my little surgery just the fear of feeling things was so scary, I can't even imagine feeling the pain and not being able to stop it. It just makes me sooo sad that he had to go through that. I'm also sorry that the there was a lot of bleeding and I really hope he doesn't have to get the other type of packing that you don't want to mention. I really wish the best for your son and I hope that he recovers soon.

I think that they should have thought about the whole prednisone/ cold thing. I think that they should have at least been more cautious. Yes most patients are so high and sing etc etc, but the whole delayed surgery/prenisone thing, you think, would make them slightly more cautious. They should have monitored him better to be on the safe side and had they done that would have realized that he was in so much pain. I think that when people get so used to doing things their way and when doing it for so long they just lose that cautious side. Sara may have a point about taking legal action. I mean, they obviously didn't take any extra caution with the whole prednisone thing, plus him having a cold and the polyps being huge, plus the fact that he tried to stop them and they ignored him, plus the fact that he was clenching his knuckles to no end.... I mean that in itself if anyone was paying real attention would show that it wasn't a normal circumstance ... I would think anyways.

I don't know, it just really upsets me that things like this happen. I want to be a nurse and I want to be a damn good one. That's one thing patients would say is that I was actually caring towards them and treated them like people. I hope that I can get back into nursing and be the best that I can be so that people can have the best treatment possible.

Anyways, I wish your son luck the next time they check the packing. I'm keeping him in my thoughts.
 
felici said:
I'm sorry to hear your son and you are having such a terrible time with this. I hope things are feeling much normal for you both very quickly.
A dietician told me that the nutrition value of tinned fruit is very similar to fresh fruit, so you need feel no qualms about that. :)
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Thanks for your support. :) Glad to hear about the nutritional value of canned fruit! Last night the kid ate a couple little homemade english muffins with pizza toppings, besides soup, so that's a good indication.
Shinsplint said:
Hey there Anna. I'm sorry about all the crap you've been going through. It sounds like you have one hell of a tough son; you should be proud of him to the max! Your last post echoed my thoughts exactly. You'd think medical personnel, with all the study they've done and the levels of organisational skills they have to have to carry all those responsibilities would have enough foresight to prevent such a horrible, medieval-style situation. I mean, I can't believe stuff like that happens in the 21st century in our hospitals. Bad enough you had to wait a year... But seriously, I just think you have the greatest patience. You must be a shining light for your family. Your sons are very lucky they have you to look up to.:)

I would seriously be considering sueing in your position too. Docs these days seem more irresponsible than they did when I was a child. I tell you, this really gives me second thoughts about having a nose job-lol.

I'm sure everything will go well and for what it's worth, I'll pray for Alex to have a speedy recovery.
Take care hon. XX
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Thank you SO much for your prayers...I always am grateful for that. At the very least I will be calling the College of Physicians & Surgeons, the regulatory body, and depending on whether my son wants to proceed...maybe I'll consult with a lawyer, but I think he wants to put it all behind him. Tomorrow, I'll be putting my foot down and saying don't unpack his nose unless you've got local anasthetic at the ready, in case he bleeds and needs re-packing, because I don't want my son to have any more unecessary suffering.
lukewarm said:
I was wondering if anyone would mention a lawsuit. That’s the first thing I thought of, and I’m certainly not sue-happy. Generally if no one is hurt, I’m all for just letting stuff slide. I would be talking to lawyers. Man I can’t believe how irresponsible and unprofessional that surgeon is! He went through 8 years of schooling in addition to at least 6 years of residency to botch up everything? I mean a surgeon just shouldn’t get flustered at the sight of blood. He should sign the damn prescription, show up for scheduled surgeries, and most of all, he should make sure his patient isn’t in any pain! Especially after your son TOLD him that he was experiencing intense pain! I’m getting angry though so I’m going to calm down, you guys are an amazing family, I hope that everything does work out and that you and your poor son don’t have to go through something like that again. I would be documenting and recapping everything that went wrong though in a notebook in case you do end up suing. Pictures as well. Ugh what an ass!
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Thanks Luke. Everything might be behind us tomorrow if his packing comes out with no bleeding. Then we can walk away. I will be writing a letter to the surgeon however.
Risty said:
I am SOOO sorry about what happened to your son! Reading was bringing me to tears. (I'm kind of emotional right now with TOM being next week). It just broke my heart that he had to go through so much pain. I mean from my little surgery just the fear of feeling things was so scary, I can't even imagine feeling the pain and not being able to stop it. It just makes me sooo sad that he had to go through that. I'm also sorry that the there was a lot of bleeding and I really hope he doesn't have to get the other type of packing that you don't want to mention. I really wish the best for your son and I hope that he recovers soon.

I think that they should have thought about the whole prednisone/ cold thing. I think that they should have at least been more cautious. Yes most patients are so high and sing etc etc, but the whole delayed surgery/prenisone thing, you think, would make them slightly more cautious. They should have monitored him better to be on the safe side and had they done that would have realized that he was in so much pain. I think that when people get so used to doing things their way and when doing it for so long they just lose that cautious side. Sara may have a point about taking legal action. I mean, they obviously didn't take any extra caution with the whole prednisone thing, plus him having a cold and the polyps being huge, plus the fact that he tried to stop them and they ignored him, plus the fact that he was clenching his knuckles to no end.... I mean that in itself if anyone was paying real attention would show that it wasn't a normal circumstance ... I would think anyways.

I don't know, it just really upsets me that things like this happen. I want to be a nurse and I want to be a damn good one. That's one thing patients would say is that I was actually caring towards them and treated them like people. I hope that I can get back into nursing and be the best that I can be so that people can have the best treatment possible.

Anyways, I wish your son luck the next time they check the packing. I'm keeping him in my thoughts.
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Don't worry at all about being a good nurse, Risty. I have met far more fabulous doctors, surgeons and nurses than shitheads. People in every profession make errors in judgement. When a surgeon makes errors...the consequences are all the more painful. They have huge responsibilities, it's the arrogant ones like Al's that need to learn accountability, not the majority of the health profession. Thank you so much for your understanding. Today it's a walk with the dog, and more waiting with Alooysius (nickname) His friends and family are dropping in now and then but he's too in and out of sleep & feels too gross to really visit. I'm putting tomorrow morning out of my mind because the potential for more suffering is there if the surgeon doesn't listen to me when I tell him under no circumstances can he unpack his nose without local anasthetic or gas at the ready because I will not allow one more unecessary bit of suffering. I read on the internet surgeons don't pack noses without sedation or anasthetic, and that's exactly what A-hole did not once, but TWICE. Unbelievable. So tomorrow I have to be strong and firm.

My eating has been bad 2 days in a row. Well over the 2000 mark. And no exercise. Today I can't decide whether I should go to the gym or walk the dog around the lake. I'll decide at the last minute. Not eating well and not exercising is the kiss of death for me because my mental health starts slipping if I don't stay on daily exercise. I know this. I have to give myself a good strong kick in the keister. At least I got my house and Al's room cleaned yesterday. Today I might buy a push broom, some rakes and a push lawn mower for my driveway and little patch of grass. I have mostly trees, it's like a forest in my yard and neighbourhood..really nice.
 
:hug2: Oh my girl:hug2: I cant even imagine what you have been going through - honestly I thik i woudl considering sueing especially after what you said you read on the internet...that really sucks and your son is still young - way to young to have to go through pain and suffering like that...

Dont worry abt your eatign right now but I would try to focus on some exercies your stress iskinda throught he roof so allow yourself that grace period of bad eating - you sound a bit liek me ie your mental health and exercisign - I try for that at least 30 mins of exercise a day because I fall apart with out it - for me and my sanity and to manage my stress I need to exercise...

Im glad venting in your diary helps you get through what you are dealing with...and I really jsut dont know what else to say...Honestly though definately look into sueing...(Im still kicking myself to this day that I didnt sue a resturant for serving my daughter a salad made with fish oil after we told them she is highly allergic to fish ) totally diff I know but Im relating and honestly I should have sued the restirant or that jerk of a waiter...

You are definately in my thoughts girla dn so is your son:hug2: :) :hug2:
 
Yeah I know it's not everyone, but it still makes me mad :p Anyways, I hope that everything goes well today! I also hope you'll be able to regain some motivation for your eating and exercise, you definately don't want your health to slip while your son needs your full support. Maybe that'll help motivate you to keep going ;)
 
Oh I agree with Risty, it's hard to feel motivated about your own schedule and needs when you're focused on your family. I hope you do take a little time for yourself, and you'll get right back on track! I agree that it will be a relief to walk away from the situation and put it behind you, but good for you for looking up information so that you're able to stand up for your son. Try and have a nice evening.
 
Cinder, Risty, Luke, (((everyone))) thanks again for reading my endless saga. Wow, this has been the year for surgeries in my family, first my mom, then me, now my son. Whoo-hoo, might as well get them all done in one year.

I've had a nice weekend having my son at home all weekend...usually I don't see either of my boys that much...so this was nice. Al's slept a lot, he's eating more and in better spirits. I also got a lot of laundry and cleaning done and today I walked my Rufus Maximus Aurelius around the lake ... it was sooooo beautiful out. Then I did another read with the director and found out an actor I know will be in the film with me...he's a super sweet guy. Naps for the past 3 days...ahh, this is the life.

Believe it or not, I'm looking forward to returning to work, if only for the routine to help with eating healthy and exercise!
 
I recognize that name! The Gladiator? I just saw it yesterday! or the day before....lol I'm happy you had a beautiful day, and that things are looking a little better :hug2: yay for naps!
 
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